Journey from Hopeless to Hope

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At times, I feel hopeless. Does acknowledging disappointment mean that I’ve given up?  Does it mean I’m a realist or a defeatist? When dealing with life as it is presented, is there a recommended ratio of hope to realism? Of optimism to acceptance? For me, I’ve found that changing expectations allows for an increase in hope that leads in new and realistic directions.

Hope is a feeling of expectation and desire for something to happen. It can be a short term hope – “I hope the weather is good,” or a long term hope – “I hope my chronic pain goes away.” Hope for things we know are not possible in this broken world can bring depression, which brings isolation and fatigue. It leads to hopelessness.

To be hopeless is to feel despair and disappointment that something hasn’t happened: an emotion frequently labeled pessimistic or defeatist. When our bodies fail, should we hope?  Or cope? I hate the word cope. I know that hating a simple word is rather severe.  However, I’ve heard the word cope too many times while living with head pain. I cheerfully and kiddingly correct anyone using the word cope by advising that adapting is the preferred word – for me. Coping is treading water while adapting is finding a way to move forward.

Futile is a word that pops up when I find myself hoping for things that are not probable. Yes, I know that God is capable of touching and healing. However, He is also capable of nurturing a deeper faith as we learn to accept and not fight.  Sometimes, I feel overwhelmed and torn between deliberate optimism and honest feelings that demand to be acknowledged.  I don’t know how to reconcile my public mask of “positive, strong, and resilient; pleasant, miserable person” with one who opens up vulnerably to connect with the people in my life.  I worry I’ll make people uncomfortable with something they can’t fix. It can’t be talked through.  My head pain can’t be overcome.  It demands perseverance when I don’t really want to be a strong, persevering person. What’s important to share?  What is rambling? I’ve always had a desire to be concise – fix it and move on. However, life has brought me unfixable challenges following brain surgery. At least so far. . .

At times, I can’t breathe.  I feel stifled by life.  I start in one direction and stall.  I start in another direction but stall again. Feeling stuck and immobilized, I can’t move.  Pain.  Constant pain.  Recurring pain.  Exhausting pain.  Inescapable pain.  Pain that doctors have given up on but I live with every day, in every moment.

Given the hopelessness and futility of wishing for life to be different, I still feel surges of hope urging me forward.  I see little – and big – miracles in life that bring joy. I experience things that make me want to get up for another day.

Despite being deaf in one ear, the other one delights in the song of my grandsons’ laughter. They’re just too darn cute.  To hear them say “Grandma” melts my heart, and I have to suppress laughter at their young declarations of independence, “Don’t want to!”.

Although my vision is far from perfect due to genetically poor vision, a dry eye from facial paralysis and skewed vision from nerve damage, I love to take in our world’s vast horizon with spectacular sunrises and sunsets. I see beauty in nature that allows me to forget my head pain for a moment. The world that challenges me also calms me.

I love the feel of working with melted wax to create encaustic paintings. I lose myself as I focus on getting a detail right. I smell the heated wax and feel stickiness as the wax cools and takes shape.  Sometimes smooth, and other times textured by objects that I embed in the wax – all to create unique pictures.

Writing provides a way to express what I’m living in a way that connects with other hurting people. When I take a break from writing, which I need to do at times, I always feel liberated when words start to flow again.  I find myself smiling, even if crooked, at the feedback that I helped even one person’s day.

Each of these respite diverts my focus bringing me back to experiencing joy. I feel gently led from hopelessness to hope.  I become filled with hope for living and finding a way through the brambles of life.

4 thoughts on “Journey from Hopeless to Hope

  1. Melissa

    Thank you for sharing your faith, life and endurance. It makes me think of the Bible verse about running the race and keeping the endurance throughout. That is God guiding you and renewing your faith every day. You are a living testimony and are reaching so many people…God has designed this pathway for you to open the hearts and eyes of the world to Him. Christ suffered and we shall too all for His Glory and those who choose a relationship with Him will only understand WHY…

    I’m honored to know you ♡

  2. Angela Gardiner

    Sally, thank you for sharing your feelings- the bad and the good. 18 months post translab for a 3+ cm AN, a 2nd surgery for a CSF leak and almost a year post radiation (because it grew back to 2 cm in 6 months), I am so disappointed that I don’t feel better. The AN side of my head has sharp pain every day- I can’t tell if it is a headache or pain in/around the bone-??. The pressure in my head feels so high my head could blow. My scalp, skin and muscles from behind my ear to above my temple and across my cheek are so tight they often feel like they are tearing. My eye that wouldn’t close for 3 months is now so tight it barely opens and still does not make tears. I am still often dizzy, off balance and extremely fatigued. I mention these things to my Drs and they say, we’re not really concerned about that. Normal side effects,… I am still trying to work but am not functioning well enough, thinking clearly enough or having enough stamina to do my job. I have considered filing for disability but don’t seem to be “sick enough”. I know I am grieving the loss of my old life. It is very easy to sink into despair. Thank you for sharing your story of hope. I am so happy for those who don’t have lingering effects of this stupid tumor but I am even happier to know that there is hope for those of us who will have to live with the effects the rest of our lives.

    1. sallystap Post author

      Thank you for your comment. I totally understand what you are saying. It is a longer road than we planned (as I type this I’m having a bad head day). It is only be sharing with each other than we find strength. But the strength that we find through community is what keeps us going!



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