You gotta laugh or you’d never stop crying. . .
In 2008, I was stunned to learn that I had a brain tumor called an Acoustic Neuroma (2.8 cm). I had surgery two months following the diagnosis. Since then, I’ve learned that for many people, not all, an Acoustic Neuroma introduces a “new you.” Navigating the new me has been a journey.
I want to share my experience hoping I can help anyone who is diagnosed, struggling with the aftermath of treatment, or a caregiver. I had never heard of this rare tumor when I learned that one had been lurking and growing in my head for up to fifteen years. After furiously researching, I learned that there are three treatment options. Ready for discussion, I learned that the only option for me was immediate surgery. So, in November, 2008, I traveled to Mayo Clinic for brain surgery.
I hesitated to share my story since it is rare to have such chronic headaches following surgery. I didn’t want to scare anyone newly diagnosed who found this site. However, I feel that information empowers us and that I am compelled to share. I am still in pain as I deal with disability. My face has experienced full paralysis, significant healing, and now ongoing morphing of synkinesis. Sometimes it is a struggle, but sharing with others has always enabled me to see the humor, joy, and hope in life.
Certainly, I encourage you to read my book. I wrote it in the first year following surgery and tried to be honest about what I experienced, both physically and emotionally. I welcome any questions that I can attempt to answer with my non-medical knowledge. I will continue to update the FAQ’s with information that I may feel is helpful in addition to the book.
I have become a writer and include information regarding other books that I have contributed to.
Thank you for visiting my site.